Life With WSS
Adult with WSS Speaks for Herself
Alison is a remarkable woman. She is actively involved in the WSS community and has made herself available for countless questions from parents of children with WSS.
read moreGus’ Story: Our Search For Answers
By: Candace, mother of Gus (age 3) Gus was diagnosed with Wiedemann-Steiner syndrome in July 2017, just shy of his 3rd birthday. Here is our story... "Please don't shoot the messenger, but...can we talk?" I will never forget this day. Gus was 8 months old, and I had...
read more