Life With WSS
Moms are no strangers to feelings of guilt. I’m pretty sure we invented it. Mothers of children with special needs experience guilt in epic proportions. It’s impressive, really, how quickly we can turn every bad situation back around on ourselves.read more
Interview with a WSS warrior Mom – Shannon Gray answers some frequently asked questions.
Shannon and her family live in Bristol, Rhode Island. Her 4 year old daughter Emma is a super hero, firefighter, princess and WSS Warrior!
The moment Dylan was born, his dad Jacob knew something wasn’t right. A few minutes later Dylan needed intubation and spent his first hours in the NICU.read more
Alison is a remarkable woman. She is actively involved in the WSS community and has made herself available for countless questions from parents of children with WSS.read more
By: Candace, mother of Gus (age 3) Gus was diagnosed with Wiedemann-Steiner syndrome in July 2017, just shy of his 3rd birthday. Here is our story... "Please don't shoot the messenger, but...can we talk?" I will never forget this day. Gus was 8 months old, and I had...read more