About the WSS Foundation

Vision Statement:

Wiedemann-Steiner Syndrome will be understood globally and all those diagnosed will reach their greatest potential.

Our Mission:

The Wiedemann-Steiner Syndrome Foundation (WSS) serves as the cornerstone of knowledge for individuals affected by the syndrome, their families, physicians, and researchers. Together we advocate for comprehensive research with meaningful discoveries and connect the WSS community through thoughtful engagement.

Core Values:

  • Nurturing lifelong learning
  • Supporting meaningful connections
  • Encouraging Intentional collaboration
  • Acting as thoughtful stewards

Fiscal Responsibility:

The Wiedemann-Steiner Syndrome Foundation’s financial objective is to minimize administrative costs and maximize research focused on components of WSS, thus conducting itself in an economical manner.