About the WSS Foundation
The Wiedemann-Steiner Syndrome (WSS) Foundation serves as a cornerstone of knowledge for individuals affected by the syndrome, their families, physicians and researchers. Together we support and advocate for ongoing research and help those diagnosed reach their greatest potential.
The Wiedemann-Steiner Syndrome Foundation’s financial objective is to minimize administrative costs and maximize research focused on components of WSS, thus conducting itself in an economical manner.
Meet Our Board Members:
President and Board Member
Libby Woolford is the WSS Foundation President and Board Member. Her daughter was diagnosed with WSS in March of 2014 at the age of 20 months via whole exome sequencing. Since that time, she and her family have been committed to learning more about WSS, supporting those affected by WSS and rare diseases, and navigating processes and resources to encourage research of WSS to ultimately benefit the lives of those affected by WSS. Libby, her husband, and two children reside in Sacramento, CA. She graduated from Loyola Marymount University with a degree in Liberal Arts and a multiple subject teaching credential. Formerly an elementary and middle school teacher, Libby has been a realtor in Sacramento since 2006. She also holds a Governor appointed seat on California’s Interagency Coordinating Council on Early Intervention.
Secretary and Board Member
Nicole Schumann is the WSS Foundation Secretary and Board Member. She is committed to raising awareness about rare diseases and is particularly dedicated to facilitating research to delineate the full scope of WSS, as well as possible gene therapy treatments to reduce WSS symptoms. Nicole has a doctoral degree in clinical psychology and practices as a pediatric psychologist. She lives in Minneapolis, Minnesota with her husband and children.
Treasurer and Board Member
Christina O’Keeffe is the WSS Foundation Treasurer and Board Member. She lives in Columbus, Ohio with her husband and two children. Her youngest son is diagnosed with WSS and inspires her advocacy work for children with special needs and those with disabilities to achieve their full potential. She has more than 15 years of leadership experience in state government, non-profit and grassroots organizations and is an active member in her community to address socioeconomic issues. Christina is a Certified Economic Development Finance Professional and holds a Bachelor of Science in Natural Resources and Economics from The Ohio State University.
Chris Mills is a WSS Foundation Board Member. He lives in California with his wife and three children. His daughter was diagnosed in 2014, prompting he and his family to take an active role in advocating for children with complex medical needs. He is devoted to promoting research and providing support to those diagnosed with WSS, and their loved ones. Chris has served his community as a sworn Law Enforcement Officer since 2005 and is currently assigned as an Investigator. Chris holds a Bachelor of Science in Criminal Justice Administration and a Master of Public Administration.
Kirsten Stuart is a WSS Foundation Board member. Kirsten’s background is in the area of language development and learning. She worked as a speech and language therapist in Pasadena California for 15 years focusing on language based learning differences and later in the area of early intervention. Her son Nikola was diagnosed with WSS at the age of 8 after an exhausting search for answers. Ms. Stuart now works in Santa Barbara CA working for a non-profit that financially assists families who have a child battling cancer. She is committed to increasing awareness for rare diseases of all types.