What separates WSS patients from treatment? Research.

Treatments are within reach given adequate funding for research; be a part of the future.


First Grant Awarded

Our first grant, in the amount of $200,000 has been awarded to Dr. Hans Bjornsson of the University of Iceland.

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Scientific Advisory Board Announced

These talented experts are guiding exciting research on WSS.


Our Mission:

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS.

Upcoming Event:

September 15th is International WSS Awareness Day (#WSSday). This day is set aside to help promote awareness in the public and professional communities.


WSS Patient Registry:

The WSS Foundation has partnered with the Coordination of Rare Diseases (CoRDS) Program of Sanford Research, a not-for-profit research institution, to establish and maintain a registry of individuals with WSS. Learn more about how to register.