What separates WSS patients from treatment? Research.

Treatments are within reach given adequate funding for research; be a part of the future.


PLAE Shoes gives 10% to WSS Foundation

Use the checkout code give826 to support The WSS Foundation and genetics research!


Our Mission:

The Wiedemann-Steiner Syndrome (WSS) Foundation serves as a cornerstone of knowledge for individuals affected by the syndrome, their families, physicians and researchers. Together we support and advocate for ongoing research and help those diagnosed reach their greatest potential.

Upcoming Event:

Giving Tuesday
Tuesday November 27th, 2018


WSS Patient Registry:

The WSS Foundation has partnered with the Coordination of Rare Diseases (CoRDS) Program of Sanford Research, a not-for-profit research institution, to establish and maintain a registry of individuals with WSS. Learn more about how to register.