Our Mission:
The Wiedemann-Steiner Syndrome (WSS) Foundation serves as a cornerstone of knowledge for individuals affected by the syndrome, their families, physicians and researchers. Together we support and advocate for ongoing research and help those diagnosed reach their greatest potential.
Upcoming Event:
WSS Clam Boil
Saturday September 15th, 2018
Bristol, Rhode Island
WSS Patient Registry:
The WSS Foundation has partnered with the Coordination of Rare Diseases (CoRDS) Program of Sanford Research, a not-for-profit research institution, to establish and maintain a registry of individuals with WSS. Learn more about how to register.