What separates WSS patients from treatment? Research.

Treatments are within reach given adequate funding for research; be a part of the future.

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Scientific Advisory Board Announced

These talented experts are guiding exciting research on WSS.

SCIENTIFIC ADVISORY BOARD

PLAE Shoes gives 10% to WSS Foundation

Use the checkout code give826 to support The WSS Foundation and genetics research!

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Our Mission:

The Wiedemann-Steiner Syndrome Foundation (WSS) serves as the cornerstone of knowledge for individuals affected by the syndrome, their families, physicians, and researchers. Together we advocate for comprehensive research with meaningful discoveries and connect the WSS community through thoughtful engagement.

Upcoming Event:

Wiedemann-Steiner Syndrome Awareness Day
September 15th, 2019

 

WSS Patient Registry:

The WSS Foundation has partnered with the Coordination of Rare Diseases (CoRDS) Program of Sanford Research, a not-for-profit research institution, to establish and maintain a registry of individuals with WSS. Learn more about how to register.