Our Mission:
The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS.
Upcoming Events:
2024 WSS Foundation International Family Conference:
November 7-9, 2024 in Denver, Colorado USA
Find your tribe in Denver! Join us for the 5th WSS Foundation International Family Conference, which brings together the largest gathering of WSS warriors and families as well as medical researchers featuring the latest findings on treatments and care.
WSS Data Collection Program
The patient-reported data of you or your loved one will help WSS acheive more significant research opportunities to increase knowledge. Enroll in the WSS Data Collection Program today to share your lived experience. Access the latest data reports on common symptoms, development milestones, and other shared characteristics of WSS.