The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS.
2024 WSS Family and Research Conference:
Date Announced Soon for a USA Location
The WSS Foundation team is hard at work finalizing details for our next conference, which brings together the largest gathering of WSS patients and families as well as medical researchers featuring the latest findings on treatments and care. Stay up-to-date on the events and research of the WSS Foundation by subscribing to our mailing list.
WSS Data Collection Program
The patient-reported data of you or your loved one will help WSS acheive more significant research opportunities to increase knowledge. Enroll in the WSS Data Collection Program today to share your lived experience. Access the latest data reports on common symptoms, development milestones, and other shared characteristics of WSS.