First Grant Awarded

Our first grant, in the amount of $200,000 has been awarded to Dr. Hans Bjornsson of the University of Iceland.

More Information

What separates WSS patients from treatment? Research.

Treatments are within reach given adequate funding for research; be a part of the future.


Scientific Advisory Board Announced

These talented experts are guiding exciting research on WSS.


PLAE Shoes gives 10% to WSS Foundation

Use the checkout code give826 to support The WSS Foundation and genetics research!


Our Mission:

The Wiedemann-Steiner Syndrome Foundation (WSS) serves as the cornerstone of knowledge for individuals affected by the syndrome, their families, physicians, and researchers. Together we advocate for comprehensive research with meaningful discoveries and connect the WSS community through thoughtful engagement.

Upcoming Event:

Fourth Annual Kids Triathlon
July 10th through September 15th, 2020


WSS Patient Registry:

The WSS Foundation has partnered with the Coordination of Rare Diseases (CoRDS) Program of Sanford Research, a not-for-profit research institution, to establish and maintain a registry of individuals with WSS. Learn more about how to register.