Our Mission:
The Wiedemann-Steiner Syndrome Foundation (WSS) serves as the cornerstone of knowledge for individuals affected by the syndrome, their families, physicians, and researchers. Together we advocate for comprehensive research with meaningful discoveries and connect the WSS community through thoughtful engagement.
Upcoming Event:
Fourth Annual Kids Triathlon
July 10th through September 15th, 2020
WSS Patient Registry:
The WSS Foundation has partnered with the Coordination of Rare Diseases (CoRDS) Program of Sanford Research, a not-for-profit research institution, to establish and maintain a registry of individuals with WSS. Learn more about how to register.