Donor Privacy Policy for

The Wiedemann-Steiner Syndrome Foundation

Last modified: July 15, 2020

The Wiedemann-Steiner Syndrome Foundation (the “Non-Profit”) is committed to protecting the privacy of our donors and the personal information you may share with the Non-Profit or that the Non-Profit holds. The Non-Profit values our donors’ trust and recognizes that maintaining this trust requires the charity to be transparent and accountable to our supporters and the public at all times. This Donor Privacy Policy (the “Policy”) describes the information collected about our donors and the Non-Profit’s practices for using, maintaining, protecting, and disclosing that information.

  1. Information Collected and Maintained. The Non-Profit collects and maintains personal information that you, our donors, provide to us when you:
    1. Contact us by phone, mail, or email, in person, or via our website or social media sites.
    2. Register for and/or attend an event sponsored by the Non-Profit.
    3. Make a donation, either through our website, at a special event, by mailing in a check, or through our social media sites.
  1. Types of Information.

    1. The Non-Profit collects and maintains the following types of personal information about our donors:
      1. Contact information, such as name, address, email, and telephone number.
      2. Giving information, including types and amounts of donations, and information pertaining to the honoring or memorial of a specific individual.
      3. Information on events attended and publications received.
      4. Any other information provided by the donor to the Non-Profit, such as public comments or posts on the Non-Profit’s website, information provided in a notes section when making a donation, or age information if provided for an event that necessitates such information.
    2. When you make a donation from the Non-Profit’s Website, the payment information is submitted directly by the donor to a third party Website for processing of payment. The Non-Profit does not collect, store, or see any credit card information.
  1. Confidentiality. All information about any financial and non-financial transactions between you and the Non-Profit is considered highly confidential. While the information is kept confidential, it may be shared with the Non-Profit’s board members, staff, volunteers, independent contractors or professionals on a need-to-know basis and in compliance with all laws, regulations, court orders, or other governmental requests.
  1. Use of Personal Information. The Non-Profit collects and maintains personal information to:
    1. Establish a relationship and communicate with you about the Non-Profit, including our programs, special events, research endeavors, and funding needs.
    2. Learn about our donors and what matters to you.
    3. Process donations and event registrations, and issue tax receipts and donor acknowledgment letters.
    4. Comply with all laws and regulations, including reporting requirements.
    5. Plan future fundraising activities and events.
    6. Analyze giving patterns.

    The Non-Profit will not share, sell, or exchange your personal information with any other entity for third-party fundraising or marketing purposes.  With the exception of UK residents, when a donation is made in memory or honor of a specific individual, the Non-Profit may share the donor’s name, address, email address and/or donation amount to the associated family of the individual being memorialized/honored for the purpose of the associated family being able to personally thank and/or convey their appreciation to the donor.

  1. Communications. By providing the Non-Profit with your personal information, you agree to receive communications from the Non-Profit. The Non-Profit will from time to time communicate with you, including by telephone, text, email, and mail, concerning the Non-Profit’s charitable activities, events, and requests for future support. To opt out of receiving these communications, you may contact the Non-Profit as described in the “Contact Us” section of this Policy below or by clicking on the “unsubscribe” link if such option is provided in a given email communication.
  1. Accessing and Correcting Your Personal Information. You can review and request changes to the personal information that the Non-Profit has collected about you by contacting the Non-Profit as described in the “Contact Us” section of this Policy below. However, please be aware that the Non-Profit may not accommodate a change request that would impact record retention or other operational requirements, violate any law or legal requirement, or cause the information to be incorrect.
  1. Changes to the Policy. The Non-Profit may periodically update this Policy. When we do, we will also revise the “last modified” date at the top of this Donor Privacy page. We encourage you to periodically review this privacy statement to stay informed about how we are helping to protect the personal information we collect. Your continued use of the service constitutes your agreement to this privacy statement and any updates.
  1. Children Under the Age of 16. The Non-Profit’s website is not intended for children under 16 years of age. No one under age 16 may provide any information to or on the website. The Non-Profit does not knowingly collect personal information from children under 16. If you are under 16, do not use or provide any information on this website or through any of its features, register on the website, make any purchases through the website, use any of the interactive or public comment features of this website, or provide any information about yourself to the Non-Profit, including your name, address, telephone number, or email address. If the Non-Profit learns it has collected or received personal information from a child under 16 without verification of parental consent, the Non-Profit will delete that information. If you believe the Non-Profit might have any information from or about a child under 16, please contact the Non-Profit as described in the “Contact Us” section of this Policy below.
  1. Contact Us. To opt out of receiving communications from the Non-Profit, to review the personal information that the Non-Profit has collected about you, or to ask any other questions regarding this Policy, please contact the Non-Profit at the below postal address or email address.

Postal Address:   1314 44th Street, Sacramento, CA 95819