Grants and Awards
The Wiedemann-Steiner Syndrome Foundation believes that lack of research presents the biggest barrier to care for patients and awards micro-grants and awards to organizations interested in researching Wiedemann-Steiner Syndrome and its related symptoms. The foundation’s mission is to expand the body of knowledge for rare genetic syndromes like WSS. We do this by supporting researchers, research institutions and non-profits whose mission aligns with ours.
Our first grant, in the amount of $200,000 has been awarded to Dr. Hans Bjornsson of the University of Iceland. Dr. Bjornsson’s project, Creation of a Specialized WSS Mouse Model to Establish Postnatal Malleability of the Neurological Phenotype in WSS, will take place over the next two years.
The WSS Foundation allocates 5% of donations toward assistance for the “undiagnosed” community and other rare disease foundations. In 2017 the WSS Foundation chose the following organizations for award monies: