by Christina O'Keeffe | Jun 15, 2022 | Stories
Meet Bo from California, USA. His mother, Jenna, introduces her son who was diagnosed with WSS at the age of 6 months after following her instincts in the search for answers. Now, they are navigating the start of their journey with early intervention and therapies to...
by Christina O'Keeffe | May 15, 2022 | Stories
Meet Hannah from the United Kingdom. Her mother, Jacqueline, shares their diagnostic journey in searching for answers for her daughter’s symptoms and drawing on Hannah’s contagious smiles as a source of strength. By: Jacqueline Law, United Kingdom Hannah...
by Christina O'Keeffe | Apr 30, 2022 | Stories
During the month of April, the WSS Foundation recognizes “Autism Acceptance Month” in order to increase knowledge and understanding on the shared diagnoses many in our community have with WSS and autism. This post comes from Sara Shea, who is a mom of a WSS warrior...
by Christina O'Keeffe | Apr 15, 2022 | Stories
Meet Lexi from Belgium. Her mother, Tinne, shares her journey from the early signs at birth and through their discovery of two diagnoses that explain her symptoms and characteristics. At four years old, Lexi embodies the strength, persistence, and love of a WSS...
by Christina O'Keeffe | Mar 15, 2022 | Stories
Meet Spencer from the United Kingdom. His mother, Leanne, shares his journey beginning with her pregnancy and then navigating many WSS symptoms during the early years of his life. At seven years old, Spencer continues to knock down the challenges as he encounters them...
by Christina O'Keeffe | Feb 28, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Allison Barnes in the USA and in the form of a letter featuring her thoughts on her WSS...
