Our Rare Journey: Lilly’s Story

Our Rare Journey: Lilly’s Story

In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Nicole Reeves in USA as she reflects on her daughter’s strength and love for others...
Rare est Alya, elle est ma perle rare

Rare est Alya, elle est ma perle rare

In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Audray Bisbrouck in France as she describes her daughter’s journey with a rare...
Aniston: My Rare Girl

Aniston: My Rare Girl

In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Devin DeBusk in USA in describing her journey in raising a daughter with a rare disease....
Rare is Proud: Meet Jordan

Rare is Proud: Meet Jordan

In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Marcy Landman in USA as she shares her pride of her son and all of his accomplishments....