by Christina O'Keeffe | Mar 15, 2022 | Stories
Meet Spencer from the United Kingdom. His mother, Leanne, shares his journey beginning with her pregnancy and then navigating many WSS symptoms during the early years of his life. At seven years old, Spencer continues to knock down the challenges as he encounters them...
by Christina O'Keeffe | Feb 28, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Allison Barnes in the USA and in the form of a letter featuring her thoughts on her WSS...
by Christina O'Keeffe | Feb 27, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Jaimie-Lee Cripps in Australia as she reflects on her son’s beginnings in his rare...
by Christina O'Keeffe | Feb 23, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Kathy Morgan in United Kingdom as a reflection of her daughter’s life and recent WSS...
by Christina O'Keeffe | Feb 21, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Brandy Smallwood in USA as she shares the qualities of her son in defining what it means...