What separates WSS patients from treatment? Research.

Treatments are within reach given adequate funding for research; be a part of the future.


First Grant Awarded

Our first grant, in the amount of $200,000 has been awarded to Dr. Hans Bjornsson of the University of Iceland.

More Information

Meet Our Scientific Advisory Board

These talented experts are guiding exciting research on WSS.


Our Mission:

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS.

Upcoming Events:

Participate in the WSS Foundation Kids Quadrathlon on June 12, 2022 either in-person in Sacramento, California or virtually from your own location. Swim, bike, & run + a circuit training course!

September 15th is International WSS Awareness Day (#WSSday). This day is set aside to help promote awareness in the public and professional communities.

International WSS Family Conference:

October 27 – 29, 2022
Baltimore, Maryland USA

Join the WSS Foundation and a gathering of the largest number of WSS patients and their families for 2.5 days of education, research engagement, networking sessions and fun activities featuring medical professionals, therapists, education advocates and many more!