Our Mission:
The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS.
Upcoming Events:
9th Annual WSS Foundation Kids Quadrathlon 2025:
June 1, 2025 in Sacremento, California USA
Please join us on June 1st, 2025 in Sacramento, CA for the 9th Annual WSS Foundation Kids Quadrathlon. Kiddos 4-18 will participate in swim, circuit, biking, and running courses during a fun filled, action packed, inclusive morning. Some kiddos have even claimed it’s better than a sleepover.
WSS Data Collection Program
The patient-reported data of you or your loved one will help WSS acheive more significant research opportunities to increase knowledge. Enroll in the WSS Data Collection Program today to share your lived experience. Access the latest data reports on common symptoms, development milestones, and other shared characteristics of WSS.