9th Annual WSS Foundation Kids Quadrathlon 2025

June 1, 2025 in Sacremento, California USA

Please join us on June 1st, 2025 in Sacramento, CA for the 9th Annual WSS Foundation Kids Quadrathlon. Kiddos 4-18 will participate in swim, circuit, biking, and running courses during a fun filled, action packed, inclusive morning. Some kiddos have even claimed it’s better than a sleepover.

REGISTER TODAY

CALLING ALL RESEARCHERS

The Wiedemann-Steiner Syndrome Foundation (WSSF) is dedicated to breaking down barriers to care for patients by advancing critical research. We believe that a deeper understanding of the challenges faced by our community is vital to improving patient care and medical practice.

 **Research Grant Opportunity:** We are excited to announce our rolling grant applications for projects aimed at addressing our communities top priorities! With a budget limit of $30,000 and a focus on patient care, we encourage collaborations and innovative approaches.

Review the RFP

WSS Foundation Progress Report

Check out our latest WSS Foundation Progress Report to see how we are improving the lives of everyone impacted by WSS. 

Read Our Progress Report

TRANFORMING THE LIVES OF PEOPLE WITH WIEDEMANN-STEINER SYNDROME (WSS)

At the WSS Foundation, we use the power of our global community to improve the lives of those impacted by WSS through greater knowledge of lived experiences, strategic partnerships, and groundbreaking research. 

Your Donation Makes a Difference

Help us accelerate discoveries on WSS during this annual collaborative event between patient organizations and researchers.

Your patient-provided data in the WSS Data Collection Program is the key for WSS to be seen. The communities with the greatest participation of enrolled patients have better opportunities!

Help WSS & Enroll Today!

What separates WSS patients from treatment? Research.

Treatments are within reach given adequate funding for research; be a part of the future.

DONATE TODAY

Our Mission:

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS.

ABOUT US

Upcoming Events:


9th Annual WSS Foundation Kids Quadrathlon 2025:

June 1, 2025 in Sacremento, California USA

Please join us on June 1st, 2025 in Sacramento, CA for the 9th Annual WSS Foundation Kids Quadrathlon. Kiddos 4-18 will participate in swim, circuit, biking, and running courses during a fun filled, action packed, inclusive morning. Some kiddos have even claimed it’s better than a sleepover.

LEARN MORE & REGISTER TODAY

WSS Data Collection Program

The patient-reported data of you or your loved one will help WSS acheive more significant research opportunities to increase knowledge. Enroll in the WSS Data Collection Program today to share your lived experience. Access the latest data reports on common symptoms, development milestones, and other shared characteristics of WSS. 

LEARN MORE