The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS.
September 15th is International WSS Awareness Day (#WSSday). This day is set aside to help promote awareness in the public and professional communities.
WSS Patient Registry:
The WSS Foundation has partnered with the Coordination of Rare Diseases (CoRDS) Program of Sanford Research, a not-for-profit research institution, to establish and maintain a registry of individuals with WSS. Learn more about how to register.