The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS.
Participate in the new WSS Data Collection Program, powered by RARE-X. Be counted and use the power of your data to make a difference.
7th Annual WSS Foundation Kids Quadthralon – May 7, 2023. Participate in-person in Sacramento, CA or virtually on your own.
Xcelerate RARE: A Rare Disease Open Science Data Challenge
The WSS Foundation is participating in this collaborative event that brings together researchers with patient organizations to make the best use of patient-reported data. The key is your patient-reported data will help WSS acheive greater opportunities to increase knowledge and access grant funds. Enroll in the WSS Data Collection Program today to share your lived experience.