by Christina O'Keeffe | Feb 5, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Veronika Norén in Sweden as she describes the early childhood years of her daughter and...
by Christina O'Keeffe | Feb 4, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Susan Thompson in USA as she explores what it means to be “rare.” By Susan...
by Christina O'Keeffe | Feb 1, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Kayla Stoa in USA in reflection of her daughter’s early years of life and recent...
