by Thor Misko | Feb 27, 2021 | Stories
by Cecile Garaud Robin est un petit guerrier, je l’ai su dès que le test a viré au bleu. Une conviction qui s’est affirmée tout au long de cette grossesse qui a pris la forme d’un marathon, d’un parcours d’obstacles que l’on a...
by Thor Misko | Feb 25, 2021 | Stories
By: Julie Hill Rare is proud, rare is strong, and this is our story so far… After many years of IVF, we had our first-born Isaac, who was born 13 weeks premature. But still I longed for another baby. We lost a baby in between and around the due date of this...
by Thor Misko | Feb 25, 2021 | Stories
By: Maree Grover, Australia Our daughter Olivia is the fifth in our family of five children and was born in June 1985. She was a smaller baby than her siblings and I had been very unwell for all of that pregnancy. Olivia was a breastfed baby until about 8 months...
by Thor Misko | Feb 23, 2021 | Stories
The following is a story about the strength of Brandon from Pennsylvania, USA in his mother’s words: Brandon is our 17-year-old WSS Warrior and is the true definition of “Rare is STRONG.” We received Brandon’s WSS diagnosis in 2017, so a little...
by Andrew Stuart | Aug 25, 2018 | Stories
Please read about Emma and her family’s fundraiser for the WSS Foundation. Page1,...
by Andrew Stuart | Jul 18, 2018 | Stories
Or, How I Learned to Stop Feeling Guilty and Learned to Love my Son. By Kirsten Stuart Moms are no strangers to feelings of guilt. I’m pretty sure we invented it. Mothers of children with special needs experience guilt in epic proportions. It’s impressive,...
