by Christina O'Keeffe | Feb 13, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Audray Bisbrouck in France as she describes her daughter’s journey with a rare...
by Christina O'Keeffe | Feb 9, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Devin DeBusk in USA in describing her journey in raising a daughter with a rare disease....
by Christina O'Keeffe | Feb 7, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Marcy Landman in USA as she shares her pride of her son and all of his accomplishments....
by Christina O'Keeffe | Feb 5, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Veronika Norén in Sweden as she describes the early childhood years of her daughter and...
by Christina O'Keeffe | Feb 4, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Susan Thompson in USA as she explores what it means to be “rare.” By Susan...
by Christina O'Keeffe | Feb 1, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Kayla Stoa in USA in reflection of her daughter’s early years of life and recent...
