Please welcome Jacob Cummings to the WSS Foundation board. He and his wife, Maria, are already knee deep in planning a Lunch on the Lake WSS Fundraiser in Minnesota on August 4th (see comments). Jacob and his family (wife Maria and 5 Children) are lifetime residents of Minnesota. Jacob and Maria’s second son Dylan was diagnosed with WSS in January 2014, one of the first 20 diagnosed cases in the world. At that time there was no support network available for families, this was seen by both Maria and Jacob as their higher calling to provide a network for others to lean on in the future. Jacob has 18 years of executive level medical sales and marketing experience, a unique asset for the foundations goal of promotion, advocacy, and growth. Welcome, Jacob. We’re excited to have you join us and will be putting those marketing skills to work.
Hi Jacob and Maria
I respond to the note above from 2014. Are you still involved in the foundation and possibly information sharing / conferencing?
We are in Australia. 2 weeks ago our 19 year old daughter was diagnosed with WSS.
Our journey to support her has been one of love, persistence, creativity …. and this still continues or rather is constantly evolving. It would be terrific to connect with others about their experiences and in particular learn about positive opportunities that may have evolved for your child or others.
We are up to the leaving school phase of life.
Kindly