Rare est Alya, elle est ma perle rare

Rare est Alya, elle est ma perle rare

In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Audray Bisbrouck in France as she describes her daughter’s journey with a rare...
Aniston: My Rare Girl

Aniston: My Rare Girl

In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Devin DeBusk in USA in describing her journey in raising a daughter with a rare disease....
Rare is Proud: Meet Jordan

Rare is Proud: Meet Jordan

In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Marcy Landman in USA as she shares her pride of her son and all of his accomplishments....
Brynlee: Defining Rare as a WSS Warrior

Brynlee: Defining Rare as a WSS Warrior

In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Susan Thompson in USA as she explores what it means to be “rare.” By Susan...
Remi – Our Strongest Little Girl

Remi – Our Strongest Little Girl

In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Kayla Stoa in USA in reflection of her daughter’s early years of life and recent...