by Christina O'Keeffe | Feb 28, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Allison Barnes in the USA and in the form of a letter featuring her thoughts on her WSS...
by Christina O'Keeffe | Feb 27, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Jaimie-Lee Cripps in Australia as she reflects on her son’s beginnings in his rare...
by Christina O'Keeffe | Feb 23, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Kathy Morgan in United Kingdom as a reflection of her daughter’s life and recent WSS...
by Christina O'Keeffe | Feb 21, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Brandy Smallwood in USA as she shares the qualities of her son in defining what it means...
by Christina O'Keeffe | Feb 19, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Stacie Arnell in USA as she shares her daughter’s journey and a message of hope and...
by Christina O'Keeffe | Feb 15, 2022 | Stories
In celebration of Rare Disease Day on February 28, 2022, the WSS Foundation led a storytelling experience featuring individuals with WSS and their parents. This story comes from Nicole Reeves in USA as she reflects on her daughter’s strength and love for others...
