Mommy Guilt

Or, How I Learned to Stop Feeling Guilty and Learned to Love my Son. By Kirsten Stuart   Moms are no strangers to feelings of guilt.  I’m pretty sure we invented it. Mothers of children with special needs experience guilt in epic proportions.  It’s impressive,...

Interview with a WSS warrior Mom

Shannon Gray answers some frequently asked questions. Shannon and her family live in Bristol, Rhode Island. Her 4 year old daughter Emma is a super hero, firefighter, princess and WSS Warrior! How did all start? Our daughter was born extremely ill and required 116 day...

Dylan’s Story

The moment Dylan was born, his dad Jacob knew something wasn’t right.  A few minutes later Dylan needed intubation and spent his first hours in the NICU.  Dylan’s mom Maria recovering in her room, wondered where her new baby boy and husband were.  Once stabilized,...

Adult with WSS Speaks for Herself

Alison is a remarkable woman. She is actively involved in the WSS community and has made herself available for countless questions from parents of children with WSS. She gives us hope. LIfe with WSS is a rollercoaster. There are good days and bad days. There are a lot...

Gus’ Story: Our Search For Answers

By: Candace, mother of Gus (age 3) Gus was diagnosed with Wiedemann-Steiner syndrome in July 2017, just shy of his 3rd birthday. Here is our story… “Please don’t shoot the messenger, but…can we talk?” I will never forget this day. Gus was...